Citizen-Led Bioethics for the Age of Citizen Science: CRexit, BioEXIT, and...
By Barbara J. Evans, MS, PhD, JD, LLM (Alumnae College Professor of Law; Director, Center on Biotechnology & Law, University of Houston) This post is part of a series on how patients are creating...
View ArticleBill of Health Blog Symposium: How Patients Are Creating the Future of Medicine
Bill of Health Blog Symposium: How Patients Are Creating the Future of Medicine We are pleased to host this symposium featuring commentary from participants in the University of Minnesota’s Consortium...
View ArticleCitizen Science where there are no citizens: participation and exclusion in...
This post is part of Bill of Health’s symposium on Critical Studies Citizen Science in Biomedical Research. Challenging the lay-professional divide in portrayals of citizen science, Vanessa Heggie...
View ArticleGenomes on-line and the Health of Privacy
By Effy Vayena and Alessandro Blasimme In January 1999, Scott McNealy, CEO of Sun Microsystems (now part of Oracle Corporation), announced that we should no longer be concerned with privacy, since...
View ArticleHow should we organize consent to research biobanking in the hospital?
By Alena Buyx, MD PhD Ever wondered what happens to the biological material you leave behind when you check out of the hospital? Nothing much, is the usual answer. However, the little bits of blood,...
View ArticleSharing Data for 21st Century Cures – Two Steps Forward…
By Mary A. Majumder, Christi J. Guerrini, Juli M. Bollinger, Robert Cook-Deegan, and Amy L. McGuire The 21st Century Cures Act was passed with support from both sides of the aisle (imagine that!) and...
View ArticleBiobanks as Konwledge Institutions – Seminar 11/3 at the University of...
Biobanks as Knowledge Institutions “Global Genes –Local Concerns” Seminar with Prof. Michael Madison (University of Pittsburgh, U.S.) Join us at the University of Copenhagen on November 3rd, 2017 to...
View ArticleCall for Papers: Wiet Life Sciences Scholars Conference
Loyola University Chicago’s nationally acclaimed Beazley Institute for Health Law and Policy is pleased to invite original research submissions for the annual Wiet Life Science Law Scholars Conference...
View ArticleDNA Donors Must Demand Stronger Privacy Protection
By Mason Marks and Tiffany Li An earlier version of this article was published in STAT. The National Institutes of Health wants your DNA, and the DNA of one million other Americans, for an ambitious...
View ArticleIs Israel Trading Medical Information for Vaccines? Ethical and Legal...
By Shelly Simana On January 7, Israeli Prime Minister Benjamin Netanyahu announced that millions of vaccines are expected to arrive in Israel, and that by March, anyone who wishes to get vaccinated...
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